Grand Challenges for Engineering  -  Mar 10, 2010

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How will health information systems make the most impact?



Electronic medical records are just the beginning of health informatics.  Health surveillance systems could be essential to fending off pandemics and minimizing the casualties of a biological or chemical attack.  What ways do you see health informatics making a difference around the world?



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Michael Horesh, Israel

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In Israel, CEPCO has developed a software to download text, video and X-ray info from multiple sources on to a USB application. The data is in the constant possession of the owner of the USB card. The card stores at least 1GB of info and has several security back ups. I declare a vested interest in informing readers about CEPCO, but my point is that the company has already answered many of the challenges posed in the article and the resulting comments. For further info, visit mc.arteleonltd.com or contact me at michaelhoresh@iib.ws

Rick Badman, Peekskill, New York

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When babies are born, they need to have their DNA referenced and stored for future adjustments to their bodies when genetic malformaitons crop up. Corrections could be made and faulty genes could be replaced. It should be possible in the future to reverse the aging process and keep people at an optimum age for the rest of thier lives thanks to DNA referencing and genetic manipulation. Synthetic organs and body components will allow people to live longer and healthier lives. My synthetic heart that uses an electrochemical reaction to expand and contract the artificial muscles would be more natural and with the organ using the body's energy, a nuclear battery, and a chemical catalyst that would use the sugar in the body to generate more energy, the heart may not need to be serviced for years. With sensors in it, the heart will be able to beat more and stronger when needed and slower when the person is at rest. My chemical catalyst device that will take simple chemicals and produce substances that he body needs would save people hundred or even thousands of dollars annually. Also, there would be no side effects since the chemicals produced would be what the people need. Also, the device should work faster than the liver or kidneys in removing harmful substances from the body. My nerve bypass, the first version which was proposed in 1974, could allow people to live normal lives again. Biojunctions may be needed so that the natural nerves can be joined to the artificial ones. Originally I thought an energy supply and a transformer may be need for the bypass. With electrochemical stimulation, there may not need to be a power source except for the body. My pain bypass would work almost on the same principle except that a shut off device would prevent pain signals from reaching the brain. They would be monitored but not felt. In hospitals, pain bypass units would tell doctors if a person is healing or still in pain even though they don't feel anything. People wouldn't be hooked on them like they would on morphine or other pain killing medication. Healing would be more rapid and patients would be mroe comfortable. When I suggested robot surgeons I refer to as mediunits over 25 years ago, a woman told me she would never want a robot to work on her body. I told her that she would most likely be unconscious by then. Mediunits would be faster and more efficient than doctors and in constant contact with a medical computer for further guidance. They won't have a great bedside manner. But at least they have and will save lives. If we can replace the telamerase molecule of the DNA with something that doesn't contribute to cellular death and can be replicated, when used in conjuction with DNA referencing and genetic manipulation, a person could conceivable live forever. Cellular replacement of defective tissue could replace cancerous organs and biosynthetic anti-bodies that are programmed to exclude toxic and diseased material plus harmful bacteria and viruses may improve our health. In my book THE MADHOUSE PROJECTS, I call the latter treatment simply the treatment. It's one device in the throat and two up the nose to prevent colds and flu. The doctor who implants my heart tells doctors in the gallery watching him that he is going to recommend that the patient eat more sugar so that the energy catalyst can work more efficiently. A nerve bypass also allows a woman who was paralyzed in a pool accident to function normally again. In Paris, a woman from the Madhouse treats coma patients by adding brain chemicals and electrical stimulation to the brain to bring the patients out of comas. A brain override device helps a person in the telecommunications area to work without needing to sleep. (You can order a copy of THE MADHOUSE PROJECTS over the Internet. Just look up Rick Badman and the book title.) Once we can determine how best to treat individuals without causing harmful side effects, doctors may be able to personallize treatment and prevent physical problems in the future. Once we can insert solid state brain implants that can work with the rest of the body and improve the brain plus allow people to interact with experiencable programs in computers better, many of our medical problems might come to an end. One time released tablet with exactly what the body needs to remain at peak efficiency might be all a person needs each day. Medical cost should go down once we can make medicine more efficient and effective. If the aging process can be reversed and cellular degradation eliminated, we could have a healthier population that lives for centuries.

Charles M. Barnard, Wisconsin

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Start by requiring pharmacies to issue a report of all medications people are taking, in a 1-3 lines per drug format which includes the drug, the Dr., the dosage. This report should fold to pocket sized. Every pharmacy software system can easily generate this report. Having that information on paper when visiting a dr. : Reduces office visit time by at least 5 minutes. Reduce the chance of unforeseen drug interactions. This could be started within a day or two of deciding to do it, and would result very quickly in better, lower cost healthcare. Even without informatics, there are cheap and simple things which can be done to greatly reduce the load on the health care system: Concentrate on preventive measures (e.g. Provide proper nutrition for everyone, especially children; screening children for eyesight problems and other problems early and often. Do an in-depth physical every so often, at increasingly small intervals as people age after maturity, and decreasing intervals up until that time. Any one who is growing rapidly needs more frequent examination, infants & teens are prime examples. Require evaluation for genetic disease before having children. (And then ACT upon that information!) Autopsy all deaths--at least take tissue samples and record data for later analysis. This information can be used to evaluate the care being received, to monitor trends, and to find the cuae of death (which often isn't truly known. This information, as well as any existing implants, appliances, long-term diseases and such need to be with the person in human readable form at all times. While the information can and should be electronically stored too, one should not count upon being able to read electronic records. Unfortunately, the records system in health care is 50 years out of date. Everything is stored chronologically, and there is no automatic summarizing process to give care givers the important information up front. Medical records need to be periodically summarized and verified--dr's notes, observations and conclusions are not always correct, are not always entered or are entered incorrectly, monitoring laboratory tests do not always make it to the physician Ideally, I would like to see an integrated records system which would permit the caregiver to access the records through a heads-up display, make verbal notes, and include some sensors for such things as IR (which can immediately tell you about some kinds of trauma which are otherwise invisible.) Audio amplification and computer analysis can detect many problems, and rapidly narrow down a diagnosis. Having the records of a patient immediately available to the dr. in a form which permits her to see the vital facts in once place would greatly improve health care. Another real simple improvement is to have dr's terminate appointments 5 minutes before the time-slot is up--a huge majority of patients don't inform the dr. of their most pressing concern until the dr. starts to leave. As the population ages, more medications are issued and more events happen to any individual. At the same time their ability to remember information declines. This makes the pharmacy lists that much more valuable. Ideally of course, the medication information is updated real-time in the hospital records, and all of your routine mediccla service providers have access.

Edie, Fresno, CA

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Doctors don't just need access to your entire medical history, they need it in a form that makes it quickly available to them---at a glance, instead of having to shuffle through tons of data. For instance, if the figure of a human appeared on the screen, with areas of the body highlighted, or bearing icons, indicating past or current surgeries or illnesse, doctors could click on whatever was of interest, get date, diagnosis, treatment, etc. There could be a scroll across the bottom with most recent test results that proved abnormal---an icon to click to see current and past medications, reactions--an icon to click to see unusual or important family histories of disease---etc. The main thing is, at a glance, all the important data would be visible. Data on a patient could be put into a standardized information matris, able to be called up in a variety of ways, if standardized methods were adopted by labs, pharmacies, health insurers, hospitals & doctors. Also, with the ability to store so much data in small devices, people could elect to carry their own information on their person, rather than have it part of a hospitals general records. And the information, once stored on personal devices, or charts, could have identity elements removed and be used for general studies while the person remained anonymous.

C J Buechler, Dayton, Ohio

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This is an essential need because of the changes in younger physicians and their expectations. A patient needs to have data available in an instant as they go to specialists or have tests. Their disease has not changed, but the environment has. I watch it in the practice of eye doctors where I had gone for some time. He retired, and at least one other partner is up in years. Now each young doctor is a specialist. You know you cannot see or have trouble reading. Don't ask for help from the wrong specialist! You get that service from someone else. Cafeteria medicine, anyone?

Bob, San Diego

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Certain aspects of medical informatics could easily be solved with standard engineering methods of yesterday. For instance, sharing information that is generated from machines--X-ray, CT, MRI, laboratory test results. They are being held back primarily because these information are being overpaid by insurers. Making them accessible to other doctors would arguably lead to a loss of income. Other aspects of medical informatics that require interpretation of health care professions--clinical notes is currently held back by the huge (and unjustifiable) cost of medical IT that cannot be sustained by smaller clinics. Unfortunately, no one is making a net-based free medical record system that any doctor can use in a user friendly way. That would be GRAND! Most docs that are involved in medical informatics don't even see patients--some of the people you quoted for instance. They are in poor position to be directing these efforts since they don't use it and suffer the pains of using current software.

Jim Craig, Rhode Island, USA

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Self Service Personalized Medicine (SSPM). An individual should eventually be able to buy easy-to-use devices that measure a plethora of biomarkers and feed it into their computer and/or upload it for analysis. DNA, epigenetic markers, serum markers, breath analysis, heart monitors, etc should all be made to be as user friendly as glucose monitors for diabetics. Much of the analysis that doctors provide can be designed into software tools. This will solve the massive shortage of care providers that would be required to bring the health standard of the world up to that of advanced civilization.

Gerard Freriks, Netherlands

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Healthcare is never as important as other discussed topics like water, energy, pollution, etc. Information Systems in Healthcare additionally can have a huge impact in healthcare but also outside healthcare. When in healthcare the complex nuts are cracked, that are called: semantic interoperability and privacy, healthcare can improve dramatically. Not only healthcare but any information processing system (e-Government, e-Business) might improve its flexibility and semantic interoperability capabilities at the same time considerably. What is NOT known widely is that this nut has been cracked, has been engineered and has found its way into a European standard and the first part is published as an ISO standard recently. The first commercial products are entering the market. The CEN/tc251 EN13606 EHRcom standard and the published open implementable specification via openEHR make generic semantic interoperability possible. Each healthcare provider or group of providers is allowed and capable to define what data and information they want to store, retrieve, present and exchange using tools. All this without any reprogramming by the software vendor and without data base conversions ever. This EHR standard is based on a new paradigm. This Archetype paradigm (also know as Two Level Model paradigm) is NOT based on the present notion of autonomous EHR-systems with proprietary (vendor specific) data base models and messaging. More information can be found: via www.openEHR.org and via g.freriks@e-RecordCompany .EU Gerard Freriks former convener of CEN/tc251 wg1 responsible for the EN13606

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